Do you care for a partner that receives a personal budget?

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Do you care for a partner that receives a personal budget?

Postby DeniseC » Mon Aug 15, 2011 9:02 pm

Posted on behalf of the Carers Federation.

Do you care for a partner that receives a personal budget?
Would you like to take part in a research project? Our colleagues at Carers Federation, a Nottingham-based charity, would like to speak to carers that are married to or living with a partner who has a physical disability, and whose partner is in receipt of a personal budget to help pay for their social care costs. The aim of the research project is to find out how the lives of carers may be changing as the personalisation agenda progresses. All participants receive a £10 High Street voucher. For further information, please call Dr Emma Richardson, Research Development Worker at Carers Federation, on 0115 962 9328, e-mail research@carersfederation.co.uk, or visit http://www.carersfederation.co.uk/resea ... rtunities/


Carers, Service Users and Personal Budgets Research Project:
Information for participants - please keep this leaflet for future reference

Who are we?

Our names are:


• Dr Mary Larkin

• Dr Emma Richardson
• Julia Tabreham


Mary lectures and is an active researcher at De Montfort University, Leicester. Emma is Research Development Worker, and Julia is Chief Executive, at Carers Federation, a Nottingham-based charity that provides services for carers. We are all researchers interested in the views and wellbeing of carers.

What is this project about?

We would like to speak to carers who are married or civilly-partnered to, or
co-habiting with a partner who is currently receiving a Personal Budget for their social care.

We want to find out from you:
• How your partner is using their personal budget
• How this has affected the relationship that you have with your partner, as well as other people
• How your life as a carer may have changed as a result of your partner receiving a personal budget to help pay for their social care costs

We are conducting this research to try and find out how the personalisation agenda, i.e. putting people in control of their own social care, is affecting the relationships between couples, where one partner receives a Personal Budget, and the other person has been, or is their carer.

We would like to speak to 40 carers whose partner is physically disabled. By this, we mean someone whose partner has:

• A mobility or physical impairment, or
• A spinal cord injury or disability, or
• An acquired or traumatic brain injury, or
• A visual or hearing impairment,

You will not be eligible to take part if you partner has a cognitive or learning disability, or a psychological disorder.

How do I take part?

If you decide to take part in this project we will ask you to:-

• allow us to interview you for around one hour
• allow us to digitally audio-record what you say to us so that we can type it up

We can interview you in your home, or if you would be more comfortable, at a public venue, such as your local carers centre.

As a token of our appreciation for taking part in this study, we will give you a
£10 High Street voucher, which can be spent in a number of shops.

If you decide that you would like to take part in this research, please
contact Emma on 0115 962 9328.

If you are unsure if you are eligible, please contact us, and we will be able to help you.

What will happen afterwards?

After the interview, you do not have to do anything more. If you wish, we can send you a written copy of the interview so that you can read it, change anything, or add anything else that you may want to say.

We will use the information you provide us with, in a completely anonymous
format, to write journal articles for publication, give presentations on our
findings, and give recommendations about how carers can best be supported as service users become responsible for managing their own care via the
Personalisation Agenda.

We will send you a summary of the study results in an easy-to-read format once the study has completed. We anticipate that this will be in October 2012.

How do I get in touch?

Please telephone, e-mail or write to any of us at the contact addresses below.
We are happy to answer any of your questions.


Dr. Mary Larkin
School of Applied Social Sciences
Faculty of Health and Life Sciences
De Montfort University
Leicester
LE1 9BH
Tel: 0116 257 7985
E-mail: mlarkin@dmu.ac.uk

Dr. Emma Richardson
Carers Federation Ltd
Christopher Cargill House
21-23 Pelham Road
Nottingham
NG5 1AP
Tel: 0115 962 9328
E-mail: e.richardson@carersfederation.co.uk

Julia Tabreham
Carers Federation Ltd
Christopher Cargill House
21-23 Pelham Road
Nottingham
NG5 1AP
Tel: 0115 962 9339
E-mail: j.tabreham@carersfederation.co.uk

What are my rights?

It is for you to choose if you want to take part in this project. If you decide to take part and later change your mind, you are free to withdraw from the project at any time. There are no right or wrong answers, we are just interested in hearing about how your relationship with your partner might have changed since your partner has received a Personal Budget to help pay for their social care. Any personal information you provide will be kept confidential. No information that could identify you will be published.

Any complaints about this project should be made to:-
Professor Paul Whiting
Chair of Faculty of Research Ethics Committee
Faculty of Health and Life Sciences
De Montfort University
Leicester
LE1 9BH

Tel: 0116 207 8283; e-mail paulwhiting@dmu.ac.uk
DeniseC
 
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Joined: Thu Mar 11, 2010 10:37 am

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